March 25, 2008

Took Matthew into Acute care on Sunday, the little turd has RECTAL STREP. That’s odd enough, that Doc only sees about 2 or 3 cases a year.
Anyway, I happen to like that Dr. and we see him often when Matthew has various problems and needs to go to Acute.
Anyway, he noticed as well how developmentally behind Matthew is. He’s over 2 and a half and isn’t talking. Physically he’s on track. He just lacks the speech department.
He mentioned we should check out the Children’s hospital in Minneapolis or try to get into Dr. Blake again at Sanford. I’ve kinda been there done that with Dr. Blake. I had him into that LEND clinic last year May and they recommended he have a BAER hearing test, (which we did, it was normal), that he see a peditrician (we did that a few weeks ago when I started getting frustrated that he hasn’t gotten much better), and that he enrolls in Birth to Three. He actually does quite well in Birth to Three.
But............ he still doesn’t say mama, he doesn’t talk, he babbles and what not, he sort of counts to 3, he doesn’t spontaneously put 2 words together, it’s very very frustrating.
So here I am trying to get him into a MN specialist, boy talk about all the pre-authorization and shit that needs. I’m still working on it. I’ve talked to my HR dept and she’s checking... I’ve asked for a referral from Dr. Bauer (the peditrician).... I’m checking with my case worker nurse at work, I’m checking with his Birth to Three coordinator, I’ll probably have to call insurance, I also got to bug the hell out of Dr. Blake’s office and she what the hell is going on.
Why on earth do we have ONE specialist that deals in this category of development, it’s crazy... that’s good old Sanford Insurance for ya. And of course that damn castle hospital won’t be built for another year at least and I want Matthew course of action started now. I’m tired of waiting... I don’t want him to be 6 or 7 years old and be so behind in school where he’s frustrated. I don’t want him to go through that.
I’m so overwhelmed over this whole deal, and talking about it in person makes me an emotional wreck.
I tend to wonder if he’s autistic or what. Whatever it may be, I just want to know so I can get him the tools he needs to make him the best little Matthew he can be. I just don’t want to see him struggle.
That’s pretty much it, my struggle in life as of right now.


update... doubt we’ll make it to MN, because of insurance reasons.... oh well. it was worth a shot.