Tuesday, January 27, 2009

Still Waiting.... April 19,2008

Well I'm still in the process of going through the testings with Matthew. It is Autism Awareness month and yesterday they did their ring around Autism by everyone holding hands at CCHS. I should have gone, but I still don't know if my baby is Autistic or not.
I took him to therapy at WC yesterday. This time I lost it. Got to talk to Julie and Angie about somethings that'll be coming up when he turns 3.
It's just so hard to talk about your little man when you feel like you can't get a straight answer from anyone. They say 1 in 150 kids has autism. Ok that's fine, but why can't I know about my kid? That's all I want, is just to know. It's not going to change how I feel about him.
I wonder if someday he'll be able to find a nice girl and get married. Who knows. I just don't know. I know if he is in the spectrum, he's on the higher functioning end. You don't even want to know what else goes on in my mind. I would hate for something to happen to me for him to struggle through life on his own.
He's made great improvements. He doesn't give my mom that look of death look, which you should never see coming from a 2 year old. It was scary. He's starting to kiss me now. I love that. He also tells me he loves me when I tell him to repeat my words. He's been doing a good job immitating words now... still extrememly hard to understand him.
He had a good time showing off in therapy yesterday because I stayed to watch after my little talk. He was all over the place, writing on the markerboard, taking tacks out of the board and trying to stab the big bouncy balls, playing on the scooters putting rings on the right colored sticks, playing with a puzzle, made a kite.... it was kinda fun to watch him, but yes he was showing off, if I wasn't there he'd be working well with them.
I asked Jule the OT he works with what her honest opinion is... is he just slow or is it something else. She said she though it was something else. Wow. Anyway, they do an Autism test at the school when he starts early childhood development, they have an educational team doing the criteria for it, and I think Julie's on it.
So, so far, Julie's made that comment "I think it's something more", and Dr. Bauer thought he could be in the spectrum from that visit to him a couple months ago.
Dr Bauer also suggested some immune bloodwork be done and some "fr...." I don't know how to say that test... because Matthew gets sick a lot. Anyway, his nurse ordered the bloodwork for the "frag...." test, so we just need to get him to a lab to pull blood for that. Just something to rule out. I can't rememeber if he said that had to do with Mental Retardation in that sense. Not sure.
He said we didn't need to do the immune bloodwork, although we probably should have, he had that rectal strep, and now is getting a cold again, I'll have to start his nebulizer treatments.
So that's about all.... it's quite a process, that's all I know.
Until I hear more again.....

No comments:

Post a Comment